Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics. Read more
Type 2 haemochromatosis is known as a juvenile-onset disorder because symptoms often begin in childhood. Read more
Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards. Read more
Everyone deserves great NHS care. But if something goes wrong or isn’t working for you, what can you do? Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, also known as type 3 or TFR2-related GH. Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, called Ferroportin Disease. Read more
This guide, produced by the employment law team at Gowling WLG (UK) LLP, provides advice to employers whose staff have genetic haemochromatosis. Read more
"I’ve got diabetes and haemochromatosis - what does this mean for me?" Read more
This essential guide, produced by the employment law team at Gowling WLG (UK) LLP, explains your employment rights if you have genetic haemochromatosis. Read more
It’s possible to develop vitamin deficiency whilst undergoing venesection treatment for genetic haemochromatosis. Our leaflet explains more. Read more
A guide for prospective parents who have genetic haemochromatosis and intend to become, or are currently, pregnant. Read more
Leaflets discussing the issues of brain fog, mood swings, depression and anxiety that people diagnosed with genetic haemochromatosis frequently report and where to get help. Read more
Haemochromatosis Genynnol - Anhwylder Gorlwyth Haearn (in Welsh, published March & April 2021) Read more
Resources for children and young people affected by genetic haemochromatosis. Published March 2021. Read more
This detailed guide for General Practitioners and primary care practitioners covers a wide-range of issues from diagnosis, genetic testing, ongoing care pathways and more. Read more
This guide for nurses & healthcare practitioners is a companion to our Venesection Best Practice Guidance (endorsed by the Royal College of Nursing). Read more
Skin conditions can occur when you have genetic haemochromatosis . This guide explains the symptoms and what can be done to help. Read more
Blood test results can be baffling - our guide helps to explain what each test is about. Read more
Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. People with GH can develop cardiomyopathy as a result of iron overload. Read more
A phobia is a type of anxiety disorder in which a person develops an overwhelming and devastating fear about a situation, place, object, animal, or insect. This guide provides helpful techniques to reduce anxiety. Read more
Some people can get nervous about medical procedures, especially before a venesection or blood test. We share a simple breathing technique, which can help. Read more
Many older people with genetic haemochromatosis experience arthropathy and associated acute joint pain. This guide by the Haemochromatosis Arthropathy Research Initiative (HARI) was part-funded by our charity. Read more
Changes to your diet cannot prevent iron overload. Check out our guide to healthy eating. Read more