Help lines

National Help Line

We employ qualified and registered nurses with specialism in genetic haemochromatosis - Our Iron Nurses. Talk to us for friendly, practical, specialist help & understanding.

Monday to Friday - 12:00 noon to 3:00pm

Telephone: 03030 401 102*
Email: [email protected]. We aim to respond to email queries within 1-2 working days, although it is often quicker

* Calls to 03 numbers cost no more than a national rate call to an 01 or 02 number. If calling from a mobile phone, calls to 03 numbers count towards any inclusive minutes in the same way as 01 and 02 calls.

Please note : these information and advisory services are for UK residents and Haemochromatosis UK international members resident outside USA & Canada. Regrettably, we are unable to provide advice to NHS or other clinicians or residents in USA or Canada.

Meet with our GH Advanced Nurse Practitioner

We provide a specialist support over and above the service on our helpline. The appointment is arranged with our Advanced Nurse Practitioner who specialises in genetic haemochromatosis. The appointments can cover all aspects of your diagnosis, care, treatment and genetics - including providing Genetic Counselling to understand your results.

Appointments are available most weekdays - Book online.

Book an Advanced Nurse Practitioner appointment

Need a GH Buddy?

Are you newly diagnosed or caring for someone affected by genetic haemochromatosis? Would you like to buddy-up with an experienced volunteer for iron overload advice? Chat with a Buddy every couple of weeks for up to 3 months, by phone at a time that suits you. For further details click here (UK residents only)

Visit the GH Buddies Page

Not sure what your test results mean?

If you’ve received your test results and are unsure what they mean- whether you have genetic haemochromatosis, are a carrier, or just need help interpreting the details - our Nurse can help.

Click the button below to answer a few quick questions and upload your letter, test report, or medical records. Our Nurse will review your results and get back to you within 5 working days with an explanation and answers to any questions you may have.

What is my genetic status?

Share experiences with our Facebook Support Group

Our Facebook Support Group provides friendly and understanding lay-person support for anyone affected by genetic haemochromatosis. This is a public group supported by HUK volunteers (not staff and not HUK nurses) and so we advise discretion if you decide to post messages to the group.

Start here

We are thankful for the support of The National Lottery Community Fund in England which partly covers the cost of a wide range of family support activity in England including helpline, Buddies and information resources.

Legal helpline

We may be able to provide access to a legal helpline, in association with Moore Barlow solicitors.

If you would like help or to speak in confidence with one of the team at Moore Barlow, simply register online.This service is provided on weekdays 9am-5pm.

Legal Helpline Registration

Please note : At the request of the NHS, we are unable to provide referrals to specific clinicians or hospitals, however we maintain a list of independent sector venesection providers. Information provided by Haemochromatosis UK is not a substitute for professional care and should not be used for diagnosing or treating a health problem. If you have or suspect you may have a health problem you should consult your doctor. We ourselves cannot provide professional legal advice or legal representation, however we can signpost you to organisations that may be able to help.

Latest

What are we up to during International Awareness Week?

The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!
TCS London Marathon 2027 Charity Place

Could you be up to the challenge of running The TCS London Marathon in 2027 for Haemochromatosis UK? UPDATE - BOTH PLACES NOW ALLOCATED.
Notification of a personal data breach

We are sorry to inform you that we have experienced a breach of security that has resulted in the unauthorised access to your personal data.
Blood Red Shamrock - Now Available in the Shop!

The blood red shamrock pin-badge is now available from the Haemochromatosis UK shop. The quality metal enamel badge can be used to increase awareness of the haemochromatosis cause.

Iron Overload Buddies - We are Here for You!

Newly Diagnosed? Our Iron Overload Buddies are here for you!
Order a Test Kit Today!

A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.
Treatment & Care

With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.
A guide to preparing for venesection

Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards.
Your NHS Rights

Everyone deserves great NHS care. But if something goes wrong or isn’t working for you, what can you do?
GH & Your Employment Rights

This essential guide, produced by the employment law team at Gowling WLG (UK) LLP, explains your employment rights if you have genetic haemochromatosis.
Mental Health and Haemochromatosis

Leaflets discussing the issues of brain fog, mood swings, depression and anxiety that people diagnosed with genetic haemochromatosis frequently report and where to get help.
Kids Zone

Resources for children and young people affected by genetic haemochromatosis. Published March 2021.
Can I donate blood?

People with genetic haemochromatosis, who have reached maintenance can be accepted as blood donors. Find out more here.
Travelers outreach

Our project, in collaboration with Breaking Down Barriers and the Sylvia Adams Charitable Trust, is working with the Irish travelling community to raise awareness of genetic haemochromatosis.