Meet our Board of Trustees

Aaron Venables

Chair of Trustees

Sarah Vousden

Trustee

Pippa Randolph

Trustee

Dieter Krapp

Trustee

William Fillias, FCCA

Finance Trustee

Aimi Elkins

Clerk to Board of Trustees

Latest

What are we up to during International Awareness Week?

The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!
TCS London Marathon 2027 Charity Place

Could you be up to the challenge of running The TCS London Marathon in 2027 for Haemochromatosis UK? UPDATE - BOTH PLACES NOW ALLOCATED.
Notification of a personal data breach

We are sorry to inform you that we have experienced a breach of security that has resulted in the unauthorised access to your personal data.
Blood Red Shamrock - Now Available in the Shop!

The blood red shamrock pin-badge is now available from the Haemochromatosis UK shop. The quality metal enamel badge can be used to increase awareness of the haemochromatosis cause.

Most read

Order a Test Kit Today!

A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.
What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & Care

With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.
Clinical Guidelines for Genetic Haemochromatosis

Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis.
HFE (Type 1) Genetic Haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Haemochromatosis Carriers

Carrier is the term used when someone has been shown to have inherited a single copy of the HFE gene mutation from one of the parents. This is sometimes called a heterozygous carrier. Carriers might be at risk of iron loading.
H63D carrier (also known as “H63D heterozygous”)

If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents.
Help lines

Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

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