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  • Haemochromatosis UK Nursing Study Day 2026

    Haemochromatosis UK Nursing Study Day 2026

    Join us for our 2026 Nursing Study Day in Portsmouth! During the day, we will listen to 9 expert speakers and discuss the latest practice in diagnosing and treating genetic haemochromatosis. Come along, and be awarded 6 hours of RCN-accredited CPD hours! Read more

  • We Are Family - Haemochromatosis UK Event for Patients and Experts - Early Bird

    We Are Family - Haemochromatosis UK Event for Patients and Experts - Early Bird

    Hold the date of 7th October 2026 for a major Haemochromatosis UK event in Belfast. Read more

  • Haemochromatosis UK at MIMS Learning Live

    Haemochromatosis UK at MIMS Learning Live

    Haemochromatosis UK will be attending MIMS Learning Live South on 12th June 2026. Read more

  • Haemochromatosis UK Nursing Study Day 2026
  • We Are Family - Haemochromatosis UK Event for Patients and Experts - Early Bird
  • Haemochromatosis UK at MIMS Learning Live
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What's on

Haemochromatosis UK at MIMS Learning Live

Haemochromatosis UK at MIMS Learning Live

Haemochromatosis UK will be attending MIMS Learning Live South on 12th June 2026. Read more

Start: 12th June, 2026 at 9:00am

End: 12th June, 2026 at 5:00pm

Published: 16th March, 2026

Author:

Location: ILEC Conference Centre, 47 Lillie Rd, London, SW6 1

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June 2026 Haemochromatosis UK Social Iron Brew

June 2026 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends. Read more

Start: 18th June, 2026 at 12:30pm

End: 18th June, 2026 at 1:30pm

Published: 10th November, 2025

Author:

Location: Online

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 An Introduction to Genetic Haemochromatosis for GPs June 2026

An Introduction to Genetic Haemochromatosis for GPs June 2026

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners. Read more

Start: 23rd June, 2026 at 6:30pm

End: 23rd June, 2026 at 7:30pm

Published: 10th November, 2025

Author:

Location: Online

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July 2026 Haemochromatosis UK Social Iron Brew

July 2026 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends. Read more

Start: 23rd July, 2026 at 12:30pm

End: 23rd July, 2026 at 1:30pm

Published: 20th March, 2026

Author:

Location: Online

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An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners July 2026

An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners July 2026

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners. Read more

Start: 28th July, 2026 at 6:30pm

End: 28th July, 2026 at 7:30pm

Published: 27th March, 2026

Author:

Location: Online

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An Introduction to Genetic Haemochromatosis for GPs August 2026

An Introduction to Genetic Haemochromatosis for GPs August 2026

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners. Read more

Start: 18th August, 2026 at 6:30pm

End: 18th August, 2026 at 7:30pm

Published: 27th March, 2026

Author:

Location: Online

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August 2026 Haemochromatosis UK Social Iron Brew

August 2026 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends. Read more

Start: 20th August, 2026 at 12:30pm

End: 20th August, 2026 at 1:30pm

Published: 20th March, 2026

Author:

Location: Online

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September 2026 Haemochromatosis UK Social Iron Brew

September 2026 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends. Read more

Start: 24th September, 2026 at 12:30pm

End: 24th September, 2026 at 1:30pm

Published: 20th March, 2026

Author:

Location: Online

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An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners September 2026

An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners September 2026

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners. Read more

Start: 29th September, 2026 at 6:30pm

End: 29th September, 2026 at 7:30pm

Published: 27th March, 2026

Author:

Location: Online

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We Are Family - Haemochromatosis UK Event for Patients and Experts - Early Bird

We Are Family - Haemochromatosis UK Event for Patients and Experts - Early Bird

Hold the date of 7th October 2026 for a major Haemochromatosis UK event in Belfast. Read more

Start: 7th October, 2026 at 8:30am

End: 7th October, 2026 at 5:00pm

Published: 13th April, 2026

Author:

Location: Titanic Hotel, The Titanic Quarter, 8 Queens Road, Belfast, BT3 9DT

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October 2026 Haemochromatosis UK Social Iron Brew

October 2026 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends. Read more

Start: 22nd October, 2026 at 12:30pm

End: 22nd October, 2026 at 1:30pm

Published: 25th March, 2026

Author:

Location: Online

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An Introduction to Genetic Haemochromatosis for GPs October 2026

An Introduction to Genetic Haemochromatosis for GPs October 2026

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners. Read more

Start: 27th October, 2026 at 6:30pm

End: 27th October, 2026 at 7:30pm

Published: 27th March, 2026

Author:

Location: Online

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Haemochromatosis UK Nursing Study Day 2026

Haemochromatosis UK Nursing Study Day 2026

Join us for our 2026 Nursing Study Day in Portsmouth! During the day, we will listen to 9 expert speakers and discuss the latest practice in diagnosing and treating genetic haemochromatosis. Come along, and be awarded 6 hours of RCN-accredited CPD hours! Read more

Start: 13th November, 2026 at 9:00am

End: 13th November, 2026 at 4:30pm

Published: 22nd April, 2026

Author:

Location: Portsmouth Guildhall , Guildhall Square , Portsmouth, Hampshire , PO1 2AB

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November 2026 Haemochromatosis UK Social Iron Brew

November 2026 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends. Read more

Start: 19th November, 2026 at 12:30pm

End: 19th November, 2026 at 1:30pm

Published: 27th March, 2026

Author:

Location: Online

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An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners November 2026

An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners November 2026

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners. Read more

Start: 30th November, 2026 at 6:30pm

End: 30th November, 2026 at 7:30pm

Published: 27th March, 2026

Author:

Location: Online

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Christmas (December) 2026 Haemochromatosis UK Social Iron Brew

Christmas (December) 2026 Haemochromatosis UK Social Iron Brew

Join us for our festive Iron Brew, meeting others with genetic haemochromatosis, sharing stories or just to listen. Read more

Start: 17th December, 2026 at 12:30pm

End: 17th December, 2026 at 1:30pm

Published: 27th March, 2026

Author:

Location: Online

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Back to top

Latest

  • What are we up to during International Awareness Week?

    What are we up to during International Awareness Week?

    The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!

  • TCS London Marathon 2027 Charity Place

    TCS London Marathon 2027 Charity Place

    Could you be up to the challenge of running The TCS London Marathon in 2027 for Haemochromatosis UK? UPDATE - BOTH PLACES NOW ALLOCATED.

  • Notification of a personal data breach

    Notification of a personal data breach

    We are sorry to inform you that we have experienced a breach of security that has resulted in the unauthorised access to your personal data.

  • Blood Red Shamrock - Now Available in the Shop!

    Blood Red Shamrock - Now Available in the Shop!

    The blood red shamrock pin-badge is now available from the Haemochromatosis UK shop. The quality metal enamel badge can be used to increase awareness of the haemochromatosis cause.

Most read

  • Order a Test Kit Today!

    Order a Test Kit Today!

    A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.

  • What is genetic haemochromatosis?

    What is genetic haemochromatosis?

    Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.

  • Breakfast Cereals and their Iron Content

    A rough guide to the Iron content in cereals

  • Treatment & Care

    Treatment & Care

    With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.

  • Clinical Guidelines for Genetic Haemochromatosis

    Clinical Guidelines for Genetic Haemochromatosis

    Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis.

  • HFE (Type 1) Genetic Haemochromatosis

    HFE (Type 1) Genetic Haemochromatosis

    Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.

  • Employers' guide to haemochromatosis

    Employers' guide to haemochromatosis

    People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.

  • Haemochromatosis Carriers

    Carrier is the term used when someone has been shown to have inherited a single copy of the HFE gene mutation from one of the parents. This is sometimes called a heterozygous carrier. Carriers might be at risk of iron loading.

  • H63D carrier (also known as “H63D heterozygous”)

    If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents.

  • Help lines

    Help lines

    Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

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