Our latest report with FTI Consulting LLP demonstrates that there is a clear economic case for routine population-based GH screening in Northern Ireland Read more
Although some existing literature suggests that HFE carriers do not load iron, this case demonstrates the importance of regularly monitoring TSAT and SF levels in C282Y carriers, as iron overload can be unpredictable due to various genetic and environmental factors. Read more
This study, published in November 2022, reveals that people with genetic haemochromatosis are at greater risk of suffering with poor mental health than the general population. Read more
Our latest report reveals the true costs to the NHS of the burden of ill-health arising from genetic haemochromatosis. Read more
For what we believe to be the first time, we have quantified the prevalence of genetic haemochromatosis in the Northern Irish population. Read more
This study, undertaken 2022, demonstrates that screening for genetic haemochromatosis neither attracts the worried well nor causes anxiety. Read more
In this report, we discuss the results of a survey on genetic haemochromatosis treatment approaches in the UK. Read more
This 22-page report was commissioned in response to the UK National Screening Committee consultation on genetic screening for GH in adults. Published February 2021. Read more
Our State of the Nation report illustrates current clinical practice regarding the care of people with genetic haemochromatosis (GH), across the United Kingdom. Read more
In 2017, our charity conducted the world's largest survey of people affected by genetic haemochromatosis. Read more