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  • Order a Test Kit Today!

    Order a Test Kit Today!

    A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now. Read more

  1. Get help
  2. Newly Disagnosed Essentials

Newly Diagnosed Essentials

We provide a wide range of publications, covering aspects of genetic haemochromatosis.

Many of these information & advice guides are included in every membership pack as just one of the benefits of membership. Join us today and receive your own printed copies.

Order a Test Kit Today!

Order a Test Kit Today!

A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now. Read more

Published: 8th January, 2025

Updated: 8th June, 2026

Author: Neil McClements

Help lines

Help lines

Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding. Read more

Published: 24th June, 2024

Updated: 24th February, 2026

Author:

Treatment & Care

Treatment & Care

With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect. Read more

Published: 16th May, 2024

Updated: 5th September, 2025

Author: Neil McClements

A guide to preparing for venesection

A guide to preparing for venesection

Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards. Read more

Published: 14th May, 2024

Updated: 25th June, 2024

Author: Neil McClements

Your NHS Rights

Your NHS Rights

Everyone deserves great NHS care. But if something goes wrong or isn’t working for you, what can you do? Read more

Published: 12th May, 2024

Updated: 25th June, 2024

Author: Neil McClements

GH & Your Employment Rights

GH & Your Employment Rights

This essential guide, produced by the employment law team at Gowling WLG (UK) LLP, explains your employment rights if you have genetic haemochromatosis. Read more

Published: 24th October, 2022

Updated: 30th October, 2024

Author: Neil McClements

Mental Health and Haemochromatosis

Mental Health and Haemochromatosis

Leaflets discussing the issues of brain fog, mood swings, depression and anxiety that people diagnosed with genetic haemochromatosis frequently report and where to get help. Read more

Published: 3rd September, 2021

Updated: 30th October, 2024

Author: Elizabeth Lang

Kids Zone

Kids Zone

Resources for children and young people affected by genetic haemochromatosis. Published March 2021. Read more

Published: 26th February, 2021

Updated: 20th November, 2025

Author: Neil McClements

Can I donate blood?

Can I donate blood?

People with genetic haemochromatosis, who have reached maintenance can be accepted as blood donors. Find out more here. Read more

Published: 7th February, 2020

Updated: 25th June, 2024

Author: Neil McClements

Living well with GH

Living well with GH

Changes to your diet cannot prevent iron overload. Check out our guide to healthy eating. Read more

Published: 18th December, 2019

Updated: 3rd September, 2025

Author:

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Latest

  • What are we up to during International Awareness Week?

    What are we up to during International Awareness Week?

    The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!

  • TCS London Marathon 2027 Charity Place

    TCS London Marathon 2027 Charity Place

    Could you be up to the challenge of running The TCS London Marathon in 2027 for Haemochromatosis UK? UPDATE - BOTH PLACES NOW ALLOCATED.

  • Notification of a personal data breach

    Notification of a personal data breach

    We are sorry to inform you that we have experienced a breach of security that has resulted in the unauthorised access to your personal data.

  • Blood Red Shamrock - Now Available in the Shop!

    Blood Red Shamrock - Now Available in the Shop!

    The blood red shamrock pin-badge is now available from the Haemochromatosis UK shop. The quality metal enamel badge can be used to increase awareness of the haemochromatosis cause.

Most read

  • Order a Test Kit Today!

    Order a Test Kit Today!

    A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.

  • What is genetic haemochromatosis?

    What is genetic haemochromatosis?

    Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.

  • Breakfast Cereals and their Iron Content

    A rough guide to the Iron content in cereals

  • Treatment & Care

    Treatment & Care

    With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.

  • Clinical Guidelines for Genetic Haemochromatosis

    Clinical Guidelines for Genetic Haemochromatosis

    Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis.

  • HFE (Type 1) Genetic Haemochromatosis

    HFE (Type 1) Genetic Haemochromatosis

    Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.

  • Employers' guide to haemochromatosis

    Employers' guide to haemochromatosis

    People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.

  • Haemochromatosis Carriers

    Carrier is the term used when someone has been shown to have inherited a single copy of the HFE gene mutation from one of the parents. This is sometimes called a heterozygous carrier. Carriers might be at risk of iron loading.

  • H63D carrier (also known as “H63D heterozygous”)

    If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents.

  • Help lines

    Help lines

    Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

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