Our Buddy service is available for all people affected by genetic haemochromatosis.

Our Buddy Scheme pairs newly diagnosed people with genetic haemochromatosis with our trained volunteer buddies, to provide ongoing 1-2-1 support around :

  • a new diagnosis
  • family concerns about genetic haemochromatosis
  • anxiety about venesections or treatment
  • questions about diet, vitamins or living well with iron overload

You can chat with a Buddy every couple of weeks for up to 3 months, by phone at a time that suits you.

All our Buddy volunteers are DBS-checked and have completed listening skills, bereavement and suicide awareness training alongside a specialist course in haemochromatosis care. Please note our Buddies are not able to offer medical advice. Our Buddies are based all across the UK and overseen by our specialist nursing team. There's no cost to get involved and you can start and stop whenever you like!

Request A Buddy

We are thankful for the support of The National Lottery Community Fund in England which partly covers the cost of a wide range of family support activity in England including helpline, Buddies and information resources.