What has been your experience of genetic haemochromatosis?

Genetic haemochromatosis comes with many symptoms, concerns, complications, and misunderstandings. On top of that, it's 'invisible,' so the people around you can't always see how it affects you day-to-day. You don't get it until you get it. 

It's really important to hear your experiences with GH to build a picture of how this condition takes shape. Your story will help us in future funding applications, awareness projects, and understanding what we can do to help improve the quality of life of those with GH.

Whether GH doesn't have a huge impact on your life, or you don't go a day without worrying about it, everyone has a story to share. 

Can you share your story with us in 2025?